Individual and Family Determinants for Quality of Life in Parents of Children with Inborn Errors of Metabolism Requiring a Restricted Diet: A Multilevel Analysis Approach - INRAE - Institut national de recherche pour l’agriculture, l’alimentation et l’environnement Access content directly
Journal Articles The Journal of Pediatrics Year : 2022

Individual and Family Determinants for Quality of Life in Parents of Children with Inborn Errors of Metabolism Requiring a Restricted Diet: A Multilevel Analysis Approach

Noemie Resseguier
  • Function : Author
Aline Cano
  • Function : Author
Pascale de Lonlay
  • Function : Author
Jean-Baptiste Arnoux
  • Function : Author
Anais Brassier
  • Function : Author
Manuel Schiff
  • Function : Author
Samia Pichard
  • Function : Author
Alexandre Fabre
  • Function : Author
Celia Hoebeke
  • Function : Author
Nathalie Guffon
  • Function : Author
Alain Fouilhoux
  • Function : Author
Pierre Broué
  • Function : Author
Guy Touati
  • Function : Author
Dries Dobbelaere
  • Function : Author
Karine Mention
  • Function : Author
Francois Labarthe
  • Function : Author
Marine Tardieu
  • Function : Author
Loïc de Parscau
  • Function : Author
Francois Feillet
  • Function : Author
Chrystèle Bonnemains
  • Function : Author
Philippe Labrune
  • Function : Author
Magalie Barth
  • Function : Author
Lena Damaj
  • Function : Author
Delphine Lamireau
  • Function : Author
Julie Berbis
  • Function : Author
Pascal Auquier
  • Function : Author
Brigitte Chabrol
  • Function : Author

Abstract

Objective The objective of this study was to compare the quality of life (QoL) for parents of children with inborn errors of metabolism (IEMs) requiring a restricted diet with French population norms and investigate parental QoL determinants.
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Dates and versions

hal-03978732 , version 1 (08-02-2023)

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Abdoulaye Ouattara, Noemie Resseguier, Aline Cano, Pascale de Lonlay, Jean-Baptiste Arnoux, et al.. Individual and Family Determinants for Quality of Life in Parents of Children with Inborn Errors of Metabolism Requiring a Restricted Diet: A Multilevel Analysis Approach. The Journal of Pediatrics, 2022, ⟨10.1016/j.jpeds.2022.08.060⟩. ⟨hal-03978732⟩
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